Thursday, January 20, 2011

Am I seeing things?

I feel like I'm just going about my business, but someone is trying to get my attention.

Tonight, I was beginning my search for inspiring material for Corrigan Care and the DSAA, etc.  I like to post these things on Facebook and Twitter.  Well, the first article I found will be posted on the DSAA fb page in the morning.

This article is posted on a BeliefNet page (maybe God is telling me something) by a lady named Amy Becker (my maiden name). It talks about loving a child with Down Syndrome (for me, EMMY!) and the girl's name in the article is Chloe. My little Emmy's most favorite doll in the world was named Chloe.
http://blog.beliefnet.com/thinplaces/2011/01/perfectly-human-my-upward-down-syndrome-journey-by-kurt-kondrich.html

So I cry a little about this because it's just so strange that it's so closely tied to me, personally.  Then after I get through that I stumble across this blog.  It's not nearly as touching as the first, but it's reaching out to me, really!

http://theflegefarm.blogspot.com/2011/01/as-long-as-i-have-down-syndrome.html

This one, again, is about Down Syndrome.  I was actually searching for the DSAA's facebook page so not a shocker.  However, as I hovered over the words of the last paragraph (because it didn't really make sense to me).  It struck me.  Molly's younger sister's name was Emily.  Molly wanted to be Emily as a baby child if she had to be one.  Molly is acting exactly the way Kara does.  She always wants to be like Emmy (formal name is Emily).  I am just losing it.  I want to cry all night long.  I wish we were able to know who sends these signs to us.  I wish we were able to know why and for what reason.  Does she miss us?  Does she want to let us know that she loves us?  that she's ok?

If I could send her a message, I would tell her that I am working hard to help other children with Down Syndrome and all other disabilities.  Last night I was at a Gigi's Playhouse Gala meeting.  Tonight, I had an extremely porductive Corrigan Care meeting.  I am so excited about what is going on.  Maybe Emmy is sending me a little touch of love to encourage me to continue on and to be happy about that.

I don't know.  We're just such a mess without Emmy.  We're finally starting to pick up the pieces and try to at least act like we're having a normal day.  I'm still struggling to stay on top of things.  It's not the amount of things that I'm doing, it's that my mind has been in a fog.  I think this week it's partly cloudy in my head.  I'm getting some things accomplished, but with great effort that it's taking.

I love you all that read this blog.  I'm glad that I have an outlet to tell someone, anyone, that reads how I feel.  I don't always feel like explaining these things, but it's nice to be able to fully express when I am ready.

1 comment:

  1. Amy,
    Thanks for sharing your story. I have a couple friends right now in various stages of caring for special needs situations. One has a baby with Down Syndrome who is just making it out of the initial weeds. The other has a 2 yr old going through some horrific cancer treatments. I can't imagine the moments of sadness in the midst of it, but I'm encouraged that you are using your story to build into others' lives. Thanks for doing that.
    Brett

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